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How Literature and Film Shape and Reflect Public Attitudes toward Genetics
Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape…- Narratives
- Film
- Literature
- public attitudes
- race and genetics
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Additional Resource
Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium
The Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium (comprised of NIH program staff, affiliate members, investigators at 7 study sites, and a Coordinating Center) is funded by the…- Polygenic risk scores
- precision medicine
- diversity
- Genetic Risk
- multi-site
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Social Norms in Selective Reproduction: Implications for the Wide Offer of Genetic Screening Technologies
The ability to offer genetic information to inform reproductive decisions, for example through reproductive genetic carrier screening, expanded prenatal testing, or preimplantation embryo screening,…- genetic screening
- Reproduction
- genetic technologies
- disability
- prenatal testing
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Expanded Carrier Screening (ECS): Clinical and Ethical Considerations for Genetic Counseling
Targeted carrier screening began over 50 years ago with a focus on populations at increased risk for specific genetic conditions based on patient-reported racial, ethnic, or ancestral background. As…- expanded carrier screening
- genetic counseling
- genetic technologies
- carrier screening
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Additional Resource
Disability Language Style Guide, National Center on Disability and Journalism
The National Center on Disability and Journalism at Arizona State University’s Walter Cronkite School of Journalism and Mass Communication provides a style guide for journalists and other…- disability
- Journalism
- Journalism / Mass Media Ethics
- Language
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Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…- ethical engagement
- benefit sharing
- Africa
- Collaborations
- genomic research
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Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…- Indigenous data
- Indigenous Communities
- Big Data
- decolonization
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Additional Resource
FAQs on Genomic Studies (FoGS), The Hastings Center
An open-access repository of FAQs that accompany genomic research in social and behavioral genomics. This resource was developed in collaboration with researchers at the Stanford University Center…- Behavioral genomics
- Communication
- responsible research conduct
- Behavioral Research
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Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)
As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…- DNA-based technology
- Disaster victim identification (DVI)
- Identity sciences
- DNA identification
- natural disaster
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Current Legal Challenges to Abortion: Implications for Prenatal Genetics
The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…- abortion
- prenatal genetics
- Down Syndrome
- Prenatal Diagnosis
- Prenatal screening