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261 - 270 of 344 Topics
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Video
How Race, Ethnicity, and Ancestry Information is Used in Genetic Diagnostics: One Lab's Perspective
Dee McKnight, PhD ADWG ELSIconversations Session 2 - May 6, 2022 Question: What is the most important information, conceptually, for clinical genetics professionals to do their jobs…- Race
- Ethnicity
- ancestry
- genetic diagnosis
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Video
ELSIhub Tour
A video tour of ELSIhub, The Center for ELSI Research and Analysis (CERA)'s web portal. Visit ELSIhub.org to see our newest resources and features!- ELSIhub Tour video
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Video
Shedding Light on the Use of Population Descriptors in Clinical Genetics
Alice Popejoy, PhD ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used in…- population descriptors
- clinical genetics
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Video
Race, Ethnicity, and Ancestry (REA) in Clinical Genetics: Variability in Collection and Use
Hannah Wand, MS, CGC ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used…- Race and Ethnicity
- ancestry
- clinical genetics
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Video
The Challenges of Standardization in a System with Complex Incentives
Gillian Hooker, PhD, ScM, CGC ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition…- Standardization
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Video
Balancing Data Privacy and Data Sharing: Normative and Technical Approaches
ELSI Friday Forum • April 8, 2022 To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to…- data privacy
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Collection
Ethical and Legal Challenges Posed by the Implementation of AI Applications in the Healthcare Setting
Healthcare institutions are implementing artificial intelligence (AI) at a rapid pace. The hope is that AI will improve the quality of care and reduce costs in the long run. However, the deployment…- Artificial intelligence
- Healthcare
- health disparities
- Regulation
- FDA
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Video
Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation
ELSI Friday Forum • March 11, 2022 Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families…- autism
- autistic representation
- autistic genomics research
- genetic diagnosis
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Collection
Neurobehavioral Genetic Testing in Children: How Much Should We Know?
Recent advances in genetics have yielded important insights into the etiology of autism spectrum disorder (ASD) and other neurodevelopmental disorders (NDDs). Professional societies such as the…- Genetic Testing
- Testing children
- autism spectrum disorder
- autism
- pediatric
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Video
Video trailer (in English) on the process for family reference sample provision for missing migrant investigations
Published January 2022 This English-language video trailer for migrant advocates and migrant families describes the process for family reference sample provision for missing migrant investigations.…- DNA samples
- Immigration
- DNA testing
- DNA Databases