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Project Summary Navajo people (the Diné) experience more health disparities compared to the general population and have higher prevalence of certain genetic diseases and disorders. There is limited…

Innovations in precision medicine are rapidly changing scientific understandings of the causes of and potential treatments for the broad range of health conditions affecting the one-in-four Americans…

ABSTRACT - Ethical, Legal and Social Implications Core The Human Virome Program (HVP) will build on its predecessors, the Human Genome Program (HGP) and the Human Microbiome Program (HMP), which also…

Project Summary: The Ethical, Legal, and Social Implications (ELSI) Core The ELSI Core will ensure the protection of participants, investigators, and staff in matters of privacy, safety, and legality…

Ethical, Legal, and Social Implications Core: Abstract The Human Virome Program (HVP), which aims to broadly characterize the composition of the human virome across the lifespan in longitudinal,…

ELSI CORE ABSTRACT The VAST ELSI core aims to synchronize across all VAST cores to critically engage and innovatively approach the understanding of human Viromes in research particularly in the…

Meaningful research in the Human Virome Program (HVP) will require the collection of vast amounts of information - a process that raises a host of novel ethical, legal, and social implications (ELSI…

Project Summary: Patient and family groups (PFGs) have long supported rare disease research as fundraisers and advisers. But today, they increasingly drive the research agenda, working in partnership…

Project Summary: The outlook for many childhood-onset genetic conditions has markedly improved in the last few decades because of specialized care, supportive treatment, and the introduction of…