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Grant Abstract

A Sociotechnical Approach to Improving Security and Privacy in the Genomic Data Ecosystem

PROJECT SUMMARY/ABSTRACT The dream of open science for genomics is hindered by concerns about genomic data re-identification and the resulting restrictive data access protocols. The long-term goal is…

Grant Abstract

An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing

PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most…

Funding Opportunity

Emerging Frontiers in Research and Innovation

Grant Abstract

Utility of Genomic Sequencing in Community Care Contexts

PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…

Grant Abstract

Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests

PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…