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News
ELSI in Review • May 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our May 2022 set explores person-centered… -
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News
ELSI in Review • April 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our April 2022 set explores carrier screening,… -
News
Value Ethics: Mapping Strategies for Value Assessment and Reimbursement of Targeted Genomic Therapies for Rare Diseases – A New CERA Working Group
CERA Working Groups are interdisciplinary teams that aim to deepen our understanding of emerging, high priority, or understudied ELSI issues using innovative approaches. CERA selects one or two…- genetic therapy
- cost of gene therapies
- working group
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News
ELSI in Review • March 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our March 2022 set explores rare genetic diseases…- rare genetic disease
- Results disclosure
- Assisted Reproductive Technology
- preimplantation genetic diagnosis
- Genetic Testing
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News
New ELSIconversations with the Ancestry and Diversity Working Group of ClinGen
The Ancestry and Diversity Working Group (ADWG) of the Clinical Genome Resource (ClinGen) was founded in 2017, with the goal of providing guidance about how population descriptors such as race,…- population descriptors
- race and genetics
- race and bioethics
- Genetics and Human Ancestry
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Funding Opportunity
NHGRI Short Courses for Genomics-Related Research Education (R25 Clinical Trial Not Allowed)
- Educational activities
- Skills development
- Biomedical Research
- Behavioral Research
- Clinical Research
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