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Congress.gov
Congress.gov, originally known as the THOMAS online legislative information system, is a searchable online database of US legislation.- US legislation
- bill
- Policy
- law
- act
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Additional Resource
Federal Law Search, LawSeq℠
The LawSeq℠ database of statutes, agency regulations, and case law decisions issued by US federal authorities relevant to genomics is compiled by a team of researchers with legal, ethics, scientific…- search tool
- federal statutes
- federal agency regulations
- federal case law
- federal law
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Additional Resource
Genome Statute and Legislation Database, National Human Genome Research Institute (NHGRI)
The Genome Statute and Legislation Database, created by the National Human Genome Research Institute, includes state statutes and bills on genomics issues (such as employment discrimination, health…- statute
- bill
- legislation
- insurance
- Discrimination
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Additional Resource
State Law Search, LawSeq℠
The LawSeq℠ database of state statutes, agency regulations, and case law decisions relevant to genomics is compiled by a team of researchers with legal, ethics, scientific, clinical, laboratory,…- search tool
- state statutes
- agency regulations
- case law
- state law
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News
Will the benefits of genomics research reach “All of Us”?
One approach to identifying new potential drug targets, Dr. Keolu Fox, a human geneticist in the Indigenous Futures Lab at the University of California, San Diego claims, is adding genetic… -
News
All of Us Research Program Releases Tribal Consultation Final Report
NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities PRESS RELEASE…- Tribal Sovereignty
- indigenous community
- Data Governance
- Alaska Native/American Indian Health Research
- Best practices for clinical and research ethics consultation
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News
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…- working group
- gene therapy
- Sickle Cell
- Stakeholder Engagement
- Spotlight
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News
Developing Resources for DNA Testing at the Border: BorderDNA Working Group
Emerging technological advances and political shifts have expanded immigration-related DNA applications beyond relationship tests within a family for visa petitions. Several U.S. government programs…- genetic testing
- Immigration
- Data Collection
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News
ELSI in Action: Eight Presentations from the ELSI Virtual Forum
The ELSI Virtual Forum, held online in June 2020, presented eight of the talks planned for the 2020 ELSI Congress, sadly canceled due to the pandemic. The recorded presentations are now… -
News
Welcome to ELSIhub – Your Portal to ELSI Resources
We are delighted to announce the launch of ELSIhub! ELSIhub is your resource; now is the time to make it your own. Take a look around and bookmark the pages of most interest to you to personalize…