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Research Tool

Genetics Post-Course Survey (Genotype Data)

Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.…

Research Tool

Awareness and Purpose of Genetic Counseling Survey

Maio and colleagues designed this survey to measure awareness and perceptions of the purpose of genetic counseling. See the methods section and table 1 of the linked article for the survey questions…

Research Tool

Educational Video on Expanded Carrier Screening (ECS) & Autosomal Recessive (AR) Disorder

Conjin and colleagues created this brief educational video on autosomal recessive inheritance, the expanded carrier screening (ECS) test, reproductive options, and a description of MPS III (…

Research Tool

Educational Text on Expanded Carrier Screening (ECS) & Autosomal Recessive (AR) Disorder

Conjin and colleagues created this brief online written educational summary on autosomal recessive inheritance, the expanded carrier screening (ECS) test, reproductive options, and a description of…

Research Tool

Genetic Knowledge Test (Carrier Status, Autosomal Recessive Disorders, Expanded Carrier Screening)

Conjin and colleagues created this brief knowledge test to measure the effect of an educational video compared to an educational text. The educational text, video, and questionnaire used in this…

Research Tool

Expanded Carrier Screening Questionnaire

Conjin and colleagues created this questionnaire to assess genetic knowledge, the perceived severity of MPS III (Sanfilippo disease), perceived risk, and attitudes toward expanded carrier screening (…

Research Tool

Attitudes Toward Prenatal Genetic Screening and Testing in Twin Pregnancies Survey

Reese and colleagues designed this survey to collect information on attitudes toward prenatal genetic screening and testing, including changes in attitude toward or uptake of testing related to the…

Research Tool

Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 3

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation…