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Video
Patient and family preferences on direct contact by a health system to invite cascade screening
Nora Henrikson, PhD, MPH - Kaiser Permanente and University of Washington ELSIconversations - March 26, 2021 Background. Cascade screening is key to the promise of precision medicine, but…- Cascade screening
- Patient Preferences
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Video
Defining the Critical Components of Informed Consent for Genetic Testing
Kelly Ormond, MS, CGC - Stanford University ELSIconversations - March 26, 2021 The Consent And Disclosure Recommendations (CADRe) workgroup within ClinGen (Clinicalgenome.org) consortia has been…- Genetic Testing
- Informed Consent
- clinical genetics
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Video
Racial and Ethnic Classification in the Clinic: Is it Just?
Natalie Pino, BA - National Human Genome Research Institute ELSIconversations - March 26, 2021 The United States has a long history of institutionally classifying people by racial and ethnic (R/E)…- racial /ethnic difference
- race and genetics
- clinical challenges
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Video
Human Germline Genome Editing and the Identity Politics of Genetic Disability
Felicity Boardman, PhD - University of Warwick ELSIconversations - April 2, 2021 The intersection of human germline genome editing with identity politics has a range of implications for the…- human germline genome editing
- Personal Identity
- genetic disability
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Video
Direct-to-Consumer Genetic Testing: Public Perspectives and Considerations Regarding Ancestry and Kinship
Catherine Hammack-Aviran, MA, JD - Vanderbilt University ELSIconversations - April 2, 2021 Direct-to-consumer (DTC) genetic testing is transforming how people view their individual, familial, and…- direct-to-consumer genetic testing
- ancestry
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Video
Using an implementation research tool to guide the implementation of non-invasive prenatal screening
Tierry M. Laforce, MA, PhD Candidate - Université de Montréal ELSIconversations - April 16, 2021 cffDNA screening has changed the landscape of prenatal screening. In Canada, 2 provinces and 1…- Prenatal genetic screening
- precision medicine
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Video
Part 1. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Mary A. Majumder, JD, PhD - Baylor College of Medicine ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health…- Ethics of precision medicine
- precision medicine research
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Video
Part 2. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Amanda M. Gutierrez, MPH - Baylor College of Medicine ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health…- Ethics of precision medicine
- precision medicine research
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Video
Part 3. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara L. Ackerman, MPH, PhD - University of California San Francisco ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry…- Ethics of precision medicine
- precision medicine research
- ELSIconversations
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Video
Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara J. Knight, PhD - University of Utah ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health care system (…- precision medicine research
- Ethics of precision medicine
- ELSIconversations