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Grant Abstract
Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society
Project Narrative The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next…- academic program
- Achievement
- Address
- Affect
- Alaska Native
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Grant Abstract
Consumer Protections for Genomics and Precision Health
PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…- Accountability
- Address
- Adopted
- Advertising
- Affect
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Grant Abstract
Access to Genetic Information Leveraging Innovative Technology (AGILITY) Study
PROJECT NARRATIVE More efficient ways for people to make decisions about having genetic testing are needed. We will compare use of a chatbot to standard genetic counseling in helping healthy adults…- Academy
- Address
- Adult
- American
- arm
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
The incorporation of genetics and genomics into medical care and the public domain raises new challenges for how we understand privacy and identity, concepts that have long been closely linked in…- Address
- Advertising
- Affect
- Age
- All of Us Research Program
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed…- Affect
- American
- Area
- Award
- base
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Grant Abstract
After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy…- Adopted
- base
- California
- clinical care
- Clinical Research
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Grant Abstract
A Sociotechnical Approach to Improving Security and Privacy in the Genomic Data Ecosystem
PROJECT SUMMARY/ABSTRACT The dream of open science for genomics is hindered by concerns about genomic data re-identification and the resulting restrictive data access protocols. The long-term goal is…- Adopted
- Adoption
- Algorithms
- Attitude
- Belief
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most… -
Grant Abstract
Utility of Genomic Sequencing in Community Care Contexts
PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…- Address
- Advisory Committees
- Area
- base
- Behavior
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Grant Abstract
Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests
PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…- Address
- adverse outcome
- Affective
- base
- Behavioral