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NIH Sep 16, 2020 | R01
After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
Institution: Baylor College of Medicine
FOA Number: PA-17-444
Abstract
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy concerns for database participants and their families. This project will measure public preferences related to law enforcement participation in genetic genealogy databases and develop best practices for investigative genetic genealogy that operationalize these preferences by engaging experts and relevant constituencies. The project will have a positive public health impact by promoting public trust in sharing genetic data to maximize its individual and social utility, including in clinical care and research.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
R01Project Number:
R01HG011268Start Date:
Sep 16, 2020End Date:
Jun 30, 2024PROJECT TERMS:
Adopted, base, California, clinical care, Clinical Research, Complex, Crime, Data, Databases, Deltastab, Development, DNA, Equilibrium, European, experimental study, Family, Focus Groups, Forcible intercourse, Forensic Medicine, Future, Genealogical Tree, genealogy, Genetic, Genetic Databases, genetic privacy, Geography, Goals, Government, Individual, Industry, innovation, insight, Intention, interest, Interview, Investigation, Law Enforcement, Light, Measures, Methods, Murder, Nature, offender, Participant, Peer Review, Police, Policies, policy implication, preference, Privacy, Private Practice, Procedures, Public Health, Public Opinion, Public Participation, public policy, public trust, Publishing, Research, Research Personnel, Resources, Review Literature, Safety, Scientist, Services, social, Statutes and Laws, success, Surveys, Techniques, Time, Trust, United States, Violence, Woman, Work
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