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Grant Abstract
Consumer Protections for Genomics and Precision Health
PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…- Accountability
- Address
- Adopted
- Advertising
- Affect
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Grant Abstract
Access to Genetic Information Leveraging Innovative Technology (AGILITY) Study
PROJECT NARRATIVE More efficient ways for people to make decisions about having genetic testing are needed. We will compare use of a chatbot to standard genetic counseling in helping healthy adults…- Academy
- Address
- Adult
- American
- arm
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
The incorporation of genetics and genomics into medical care and the public domain raises new challenges for how we understand privacy and identity, concepts that have long been closely linked in…- Address
- Advertising
- Affect
- Age
- All of Us Research Program
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed…- Affect
- American
- Area
- Award
- base
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Grant Abstract
After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy…- Adopted
- base
- California
- clinical care
- Clinical Research
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Research Tool
"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program
"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with… -
Research Tool
"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with… -
Research Tool
"What Will You Check For?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"What Will You Check For?" is a 57 second video for American Indian and Alaska Native participants that explains how the All of US Research Program will return some or all results to… -
Research Tool
"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program
"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants. It provides information on… -
Research Tool
"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants. It provides information on…