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News
ELSI in Review • August 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2022 set explores ethical issues related to… -
In the Media
Edits to a cholesterol gene could stop the biggest killer on earth
MIT Technology Review |Antonio Regalado- Gene Editing
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News
Announcing a New Special Issue of the Journal of Literature and Science
We are pleased to announce the publication of a special issue of the Journal of Literature and Science, Fictions of Genetic Privacy, co-edited by Jay Clayton and Claire Sisco King. It features nine… -
News
ELSI in Review • July 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2022 set explores regulations for direct-to-consumer… -
News
Solicitation of Nominations for the 2022 NHGRI’s Outstanding Award for Enhancing Diversity, Equity, Inclusion, and Accessibility in the Genomics Workforce
View Notice online Notice Number: NOT-HG-22-014, Release Date: June 7, 2022 Purpose The National Human Genome Research Institute (NHGRI) solicits nominations for its first annual Outstanding…- Applications Grants
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In the Media
CRISPR, 10 Years On: Learning to Rewrite the Code of Life
The New York Times |Carl Zimmer- CRISPR/Cas technology
- human germline genome editing
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In the Media
Half in UK back genome editing to prevent severe diseases
The Guardian |Ian Sample- human genome editing
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In the Media
A Racist Researcher, Exposed by a Mass Shooting
The New York Times |Monika Pronczuk and Koba Ryckewaert- racism in medicine. medical research, and publishing
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News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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News
ELSI in Review • June 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2022 set explores distributed ledger technology in…