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Research Tool
Trust in Medical Researchers (Full and Short Scales)
Hall and colleagues report the development and validation of 12-item survey and a short form (4-item) survey designed to measure trust in medical researchers. Final scale items are available in Table… -
Research Tool
Trust in Medical Researchers Scale
Mainous and colleagues report the development and validation of the 12-item Trust in Medical Resesearchers Scale. This scale is designed to be self-administered. Several scale items assess concerns… -
Research Tool
Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices
McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making… -
Research Tool
Focus Group Guide, Perceived Need for Research Ethics Consultation
This focus group guide (see the methods, focus groups section of the linked article) was designed to assess interest in a research ethics consultation service. It includes a set of questions for… -
Research Tool
Preferences for the Provision of Whole Genome Sequencing Services Among Young Adults
This survey was designed for use with the 10-minute video, Whole Genome Sequencing and You (available in this database). It can be used to collect demographic information and participant attitudes… -
Research Tool
Clinical Broad Data Sharing Consent Brochure, Clinical Genome Resource (ClinGen)
This is a printable version of the information from the Clinical Broad Data Sharing Consent Video (see this database). It describes key concepts outlined in the consent form, includes testimonials on… -
Research Tool
Qualitative Story Deck (QSD)
The “Qualitative Story Deck,” (QSD) is an interactive elicitation technique desgined to explore the willingness of African Americans (and others) to participate in health research involving… -
Research Tool
Physician Attitudes Toward Pharmacogenomics Pre- and Post-test Survey
A pre- and post-test questionnaire that measures changes in the knowledge and attitudes of physicians who have been administered pharmacogenetic testing is available in the supporting information… -
Research Tool
Genomcis Knowledge and Attitudes Toward Public Health Genomics, Survey for Public Health Professionals
This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals. The survey is… -
Research Tool
Influences on Precision Medicine Knowledge and Attitudes (Survey)
This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their…