Document Type
Scenarios
Title

Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices

Author(s):

Author Name(s)
McWhirter, Rebekah
Eckstein, Lisa
Chalmers, Don
Critchley, Christine
Nielsen, Jane
Otlowski, Margaret
Nicol, Dianne

Year:

Year
2020

McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making of data access and research ethics committees by enhancing understanding of the downstream uses of genetic sequence information. Scenarios 1 - 6 are available in Table 3 of the linked publication.

Research Population:

Research Population
Adults

Citation:

Validation(s)

Validation Text

McWhirter, R., Eckstein, L., Chalmers, D., Critchley, C., Nielsen, J., Otlowski, M., & Nicol, D. (2020). A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing. Journal of Empirical Research on Human Research Ethics, 15(4), 355-364.

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