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Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples

There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…

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Ethical Issues Related to Research Uses of Residual Dried Bloodspots from Newborn Screening

Newborn screening for metabolic and genetic disease is arguably one of the greatest public health interventions—notwithstanding some ethical challenges and opportunities for improvement—because it…

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Abortion and the Genetic Counselor: The Impact of Restrictive Legislation on Genetic Counseling Practice

The first class of genetic counselors graduated with an M.A. from the Sarah Lawrence College in 1971; less than two years later, the Supreme Court decision in Roe v. Wade legalized abortion in all…

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Addressing Algorithmic Unfairness in Healthcare

Artificial intelligence (AI) healthcare technology can solve our most complex and intransigent health issues. It has the potential to enhance healthcare quality, improve access, reduce cost, and…

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Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research

Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and…

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Ethical and Legal Challenges Posed by the Implementation of AI Applications in the Healthcare Setting

Healthcare institutions are implementing artificial intelligence (AI) at a rapid pace. The hope is that AI will improve the quality of care and reduce costs in the long run. However, the deployment…

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Neurobehavioral Genetic Testing in Children: How Much Should We Know?

Recent advances in genetics have yielded important insights into the etiology of autism spectrum disorder (ASD) and other neurodevelopmental disorders (NDDs). Professional societies such as the…

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Who Are We Now? Genetics, Genomics, and the Question of the Human

“We used to think our fate was in the stars,” quipped James Watson in a Time magazine piece announcing the Human Genome Project (HGP). “Now we know, in large measure, our fate is in our genes.”…

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How Literature and Film Shape and Reflect Public Attitudes toward Genetics

Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape…

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Social Norms in Selective Reproduction: Implications for the Wide Offer of Genetic Screening Technologies

The ability to offer genetic information to inform reproductive decisions, for example through reproductive genetic carrier screening, expanded prenatal testing, or preimplantation embryo screening,…