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Grant Abstract
A Sociotechnical Approach to Improving Security and Privacy in the Genomic Data Ecosystem
PROJECT SUMMARY/ABSTRACT The dream of open science for genomics is hindered by concerns about genomic data re-identification and the resulting restrictive data access protocols. The long-term goal is…
- Adopted
- Adoption
- Algorithms
- Attitude
- Belief
Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most…
Grant Abstract
Utility of Genomic Sequencing in Community Care Contexts
PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…
- Address
- Advisory Committees
- Area
- base
- Behavior
Grant Abstract
Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests
PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…
- Address
- adverse outcome
- Affective
- base
- Behavioral
Grant Abstract
The Geneticization of Education: ethical, social, and policy implications of polygenic scores for educational attainment
Project Narrative This proposal seeks to investigate the ethical, social, and policy implications of a new kind of genetic information currently available to the public: polygenic scores for…
- Address
- Alzheimer's disease risk
- Attitude
- Behavior
- Behavioral Genetics
Grant Abstract
Integrating Nurse Champion Model for Group Reproductive Genetic Counseling for Sickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation Science Study
PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by…
- acceptability and feasibility
- Address
- Adopted
- Africa
- Africa South of the Sahara
Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from…
- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
Grant Abstract
Ethical and Social Implications of In Vitro Gametogenesis
Project Narrative "Ethical and Social Implications of In Vitro Gametogenesis" In vitro gametogenesis (IVG) is an emerging technology that involves making an egg or a sperm cell outside of…
- Address
- Age
- American
- assisted reproduction
- Attention
Grant Abstract
Assessing Minor Children's Readiness to Receive Genetic Information
This project is designed to improve our understanding of when to best communicate parental genetic risk information to minor children by assessing the minor's readiness to receive such…
- Address
- Adolescent
- Adult
- Affect
- Attitude
Grant Abstract
Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?
PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these…
- Area
- base
- Basic Science
- Biological Sciences
- Case Study