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ELSIcon2022 Paper: Genetic data and the collective good: participants as leaders to reconcile individual and public interest
ELSIcon2022 • Paper • June 2, 2022 Ilaria Galasso, Susi Geiger This paper problematizes the notion of collective good in the contest of medical research and juxtaposes consequentialist and…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022: Paper Session 9
ELSIcon2022 • Paper Session 9 • June 2, 2022 Includes discussion material from Erin Burke, Ilaria Galasso, and Crystal Gonzalez.- Live
- Paper
- equity and justice in genetics
- Education and public reception of genetic science
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Video
ELSIcon2022: Paper Session 10
ELSIcon2022 • Paper Session 10 • June 2, 2022 Includes discussion material from Ruth Farrell, Catharine Wang, Kristina Suorsa-Johnson, Susan Markens, and Christina Collart.- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Provider Practices in Referring for Germline Genetic Testing for Men with Prostate Cancer at a Safety-Net Hospital
ELSIcon2022 • Paper • June 2, 2022 Christine Gunn, Emma Li, Gretchen Gignac, Magdalena Pankowska, Stephanie Loo, Kim Zayhowski, Catharine Wang National Comprehensive Cancer Network Guidelines…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Supporting Shared Decision Making for Parents of Infants/Young Children with Disorders/Differences of Sex Development: Creation of a Genetic Testing Decision Aid
ELSIcon2022 • Paper • June 2, 2022 Sophie Lightfoot, Melissa Gardner, Meg Carley, Larry Gruppen, Lauren Mohnach, Jodie Johnson, Dawn Stacey, David Sandberg, Kristina Suorsa-Johnson…- Live
- Paper
- tools
- Genetic testing and screening
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ELSIcon2022 Paper: The Sangre Por Salud Community Advisory Board: Enhancing Genomic Medicine Research within a Latino-serving Federally Qualified Health Center.
ELSIcon2022 • Paper • June 2, 2022 Valentina Hernandez, Davinder Singh, Iftikhar Kullo, Elena De Filippis, Karen Meagher, Sara Watson, Richard Sharp, Gabriel Shaibi, Crystal Gonzalez…- Live
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- Community oversight of research
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ELSIcon2022 Paper: Translating Genomic Science: How Genetic Counselors Navigate Ethical and Professional Dilemmas in the 21st Century
ELSIcon2022 • Paper • June 2, 2022 Susan Markens With the acceleration of new genetic discoveries and testing techniques in the first decades of the twenty-first century, genomic technologies…- Live
- Paper
- Genetic Counseling
- Genetic testing and screening
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ELSIcon2022 Panel: Voluntary Genetic Testing in the Workplace: An ELSI Analysis
ELSIcon2022 • Panel Session 14 • June 2, 2022 J. Scott Roberts, Anya Prince, Debra Mathews, Wendy Uhlmann Over 150 million people in the US receive their health care through employer-…- Live
- Panel
- Stigma and discrimination
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Cultivating just & equitable genomics research partnerships with community health centers
ELSIcon2022 • Paper • June 2, 2022 Johanna Crane, Carolyn Neuhaus Research partnerships with community health centers serving ethnically and economically diverse communities present an…- Live
- Paper
- health disparities
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ELSIcon2022 Paper: Is it just for a screening program to give people all the information they want?
ELSIcon2022 • Paper • June 2, 2022 Lisa Dive, Ainsley Newson What normative role should people’s preferences should play in determining access to genomic information, particularly in relation…- Live
- Paper
- Return of Results
- Genetic testing and screening