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To be relevant and impactful, it has become increasingly necessary for researchers to engage stakeholders outside the usual research communities, such as patients and community representatives. Yet,…

International uproar followed the announcement in late 2018 of the birth of twin girls whose genomes had been edited with CRISPR genome editing technology. Critics pointed not only to the health…

Updated on 11/6/2020 This video is focused on helping you to write a strong research strategy, also called a research plan, for your ELSI grant application.

Updated on 11/6/2020 This video is focused on helping you write a strong specific aims page for an ELSI grant application.  

Updated on 11/6/2020 This video provides an overview of the many components of an NIH grant and explains how to find the instructions you need to complete these various components. It also provides…

ELSI Virtual Forum - Closing Remarks Sandra Soo-Jin Lee and Mildred Cho  

We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and…

In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research…

The development and aggregation of huge datasets of genomic information, often including hundreds of thousands of participants, has enabled large-scale genome-wide association studies (GWAS) of a…

The convergence of genomics, information sciences and Electronic Health Records is a main driver of precision medicine (PM). A common feature of definitions of PM is the use of big data for…