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Grant Abstract
Ethical, Legal, and Social Implications in Military Genomics
Advances in genomic science are attracting the interest of the U.S. military for their potential to improve medical care for members of the militay and to aid in military recruitment, training and…- biobank
- Bioethics
- Biomedical enhancement
- Caring
- combat
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Grant Abstract
African American Participation in Cancer Genetics Research
Despite significant efforts, African Americans continue to experience excess rates of morbidity and mortality from all forms of cancer relative to individuals from other ethnic and racial groups.…- African American
- Age
- Altruism
- Atlases
- Attitude
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Grant Abstract
UCEER: Utah Center for Excellence in ELSI Research P20
The University of Utah Center for Excellence in ELSI Research (UCEER) will conduct strategic planning for ELSI research, training and mentoring, and conduct two pilot projects. The focus of the UCEER…- Aneuploidy
- Child
- Childhood
- Communication
- Communities
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Grant Abstract
Ecological Concepts of Human Identity in Microbiome and Metagenomic Research
The proposed research seeks to contribute to an emerging literature that assesses the philosophical implications of the ecological concepts, metaphors, and analogies that are beginning both to frame…- Back
- Blood Circulation
- Books
- Cells
- Coin
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed…- Affect
- American
- Area
- Award
- base
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Grant Abstract
Surfacing values in the economic evaluation of genomic sequencing for diagnosis of children with rare diseases
PROJECT NARRATIVE Though any single rare disease is by definition uncommon, together these diseases affect nearly 30 million individuals in the United States, two-thirds of whom are children, and…- Affect
- Anthropology
- base
- Bioethics
- career
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Grant Abstract
Genomics-based Technologies: Access and Reimbursement Issues
Genomics-based technologies are increasingly used in clinical care and are highly relevant to public health because of their potential use in assessing risk, diagnosing, and developing treatment…- Algorithms
- anticancer research
- base
- Biology
- cancer therapy
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Grant Abstract
After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy…- Adopted
- base
- California
- clinical care
- Clinical Research
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Grant Abstract
The ethics of consent for the public release of potentially identifiable DNA data
A major ethical and policy challenge facing genomics research stems from the existing mandate for rapid public release of all sequenced DNA data. It is now clear that an individual can be uniquely…- Benefits and Risks
- Biomedical Research
- Classification
- Clinical
- clinically relevant
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Grant Abstract
Distributive Justice in Human Genetic Variation Research
The Mentored Scientist Development Award in Research Ethics will fulfill three main goals: 1) to obtain a broad and in-depth foundation in research ethics and to develop research skills in ethical…- Address
- Award
- base
- Biomedical Research
- Cells