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Video
Addressing Racism in Medical Research and Publishing
A Discussion for Journalists • November 30, 2021 Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for…- racism in medicine. medical research, and publishing
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Video
ELSIcon2022 Paper: The Sangre Por Salud Community Advisory Board: Enhancing Genomic Medicine Research within a Latino-serving Federally Qualified Health Center.
ELSIcon2022 • Paper • June 2, 2022 Valentina Hernandez, Davinder Singh, Iftikhar Kullo, Elena De Filippis, Karen Meagher, Sara Watson, Richard Sharp, Gabriel Shaibi, Crystal Gonzalez…- Live
- Paper
- Community oversight of research
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Video
Diversity Measures in Genomic Medicine
Carlee Dawson, BA ADWG ELSIconversations Session 2 - May 6, 2022 Question: What is the most important information, conceptually, for clinical genetics professionals to do their jobs well? Is…- diversity
- Genomic medicine
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Video
ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice
ELSIcon2022 • Panel Session 8 • June 1, 2022 Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie In theory, the study of Ethical, Legal, and Social Implications (ELSI) of…- Live
- Panel
- Reflections on the ELSI field
- equity and justice in genetics
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Video
Part 1. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Mary A. Majumder, JD, PhD - Baylor College of Medicine ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health…- Ethics of precision medicine
- precision medicine research
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Video
Part 2. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Amanda M. Gutierrez, MPH - Baylor College of Medicine ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health…- Ethics of precision medicine
- precision medicine research
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Video
ELSIcon2022 Paper: The Ethical, Legal, and Social Implications of Stroke Genomic and Biobanking Research in Sub-Saharan Africa: Community Member Perspectives and Factors for Consideration
ELSIcon2022 • Paper • June 2, 2022 Michelle Nichols, Arti Singh, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Sylvia Melikam, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Video
ELSIcon2022 Flash: Health professionals’ perspectives on the ethics of using COVID-19 host genomic information for clinical and public health decision-making during the pandemic
ELSIcon2022 • Flash • May 31, 2022 Sheethal Jose, Gail Geller, Juli Bollinger, Jeffrey Kahn, Brian Garibaldi Advances in host genomics research can play an important role in enabling…- Live
- Flash
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
- Paper
- Return of Results
- precision medicine
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Video
Part 4. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara J. Knight, PhD - University of Utah ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry to the health care system (…- precision medicine research
- Ethics of precision medicine
- ELSIconversations