Series
The 5th ELSI Congress - ELSIcon2022
ELSIcon2022 Flash: Health professionals’ perspectives on the ethics of using COVID-19 host genomic information for clinical and public health decision-making during the pandemic
Type
Conference
ELSIcon2022 • Flash • May 31, 2022
Sheethal Jose, Gail Geller, Juli Bollinger, Jeffrey Kahn, Brian Garibaldi
Advances in host genomics research can play an important role in enabling precision medicine and precision public health approaches for the clinical management and public health control of the COVID-19 pandemic. The implementation of genetic testing for variants associated with infectious diseases raises several ELSI issues, including genetic determinism since several non-genetic factors influence exposure to and severity of COVID-19. As an important stakeholder group, health professionals (HPs) can provide key insights into these ELSI issues. In September 2021, a cross-sectional survey was fielded to understand how HPs view the value and ethical acceptability of using COVID-19 host genomic information (HGI) across 3 main decision-making contexts: (1) hospital-based clinical decisions, (2) public health decisions, and (3) workforce decisions. The survey also assesses HPs’ beliefs related to genetic determinism and their perspectives on non-genetic factors that influence COVID-19.
Based on preliminary results from 256 respondents, a majority agree that it is ethically acceptable to use HGI in both clinical and public health decision-making but disagree with allowing their employers to use HGI to make decisions about work assignments. In addition, this paper will examine whether HPs’ beliefs about the ethical acceptability of using COVID-19 HGI is influenced by their beliefs about genetic determinism. Understanding stakeholder perspectives and anticipating the ELSI issues will help inform the policies for hospitals and public health departments to evaluate and adopt host genomic technologies in an ethically and socially responsible manner during future infectious disease outbreaks.
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Live
Flash
Population screening and public health genomics
Genetic testing and screening
Videos in Series
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 12
The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Flash Session 2
The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Incorporating Patient and Relative Preferences in the Design of Traceback Cascade Testing Initiatives
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Moderated Plenary Panel
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 14
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 13
The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity
The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 17
The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Democratizing Knowledge for Sickle Cell Disease Gene Therapy: A Deliberative Stakeholder Engagement Approach
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 15
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 10
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 9
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: Return of Secondary Genomic Findings: Experiences of Sickle Cell Disease Research Participants
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 8
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 7
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022: Paper Session 6
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The 5th ELSI Congress - ELSIcon2022 - ELSIcon2022 Paper: ELSI and the New Precision Stewards?
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