In The Spotlight
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Video: Webinar
June 2025 EFF: Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices
As large-scale genomic data sets are increasingly linked, harmonized, and repurposed across studies, questions about how to meaningfully define and… -
News
Now Accepting Monthly AJOB Target Article Proposals on EFF Topics
The American Journal of Bioethics (AJOB) is pleased to welcome target article proposals keyed to ELSI Friday Forum topics via the Center for… -
News: Article
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your…
Upcoming Events
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Jul 16
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Sep 17 - 19
Conference
Precision Genomics for Human Health
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Oct 14 - 18
Conference
ASHG Annual Meeting 2025
In the Media
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The New York Times
The Ethical Minefield of Testing Infants for Incurable Diseases
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
New Publications
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Journal Article
Covering medical care costs for participants in the eMERGE Network: Challenges for equity and implementation
by Laura J. Rasmussen-Torvik, Katherine E. Bonini, Margaret H. Harr, Mohammad Ali Abbass, Hana Bangash, Harris T. Bland, Brenna M. Boyd, Wendy K. Chung, Ellen W. Clayton, Stuart J. Cohen, John J. Connolly, Catherine Gascoigne, Valentina Hernandez, Ingrid A. Holm, Martha Horike-Pyne, Gail P. Jarvik, Elizabeth W. Karlson, Iftikhar J. Kullo, Nita A. Limdi, Mary E. Maradik, Elizabeth M. McNall, Emma Perez Mgc, Cynthia A. Prows, Gabriel Q. Shaibi, Chunhua Weng, Robb K. Rowley, Josh F. Peterson, Jodell E. Linder, & Maya Sabatello
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Journal Article
Deliberate extinction by genome modification: An ethical challenge
by Gregory E. Kaebnick, James P. Collins, Athmeya Jayaram, Rebecca G. Tiernan, Katie Barnhill, Lucy Carter, Munamato Chemhuru, Pablo Fresia, Bruce Jennings, Curt Meine, Paul Ndebele, Clare Palmer, Christopher Preston, Kent H. Redford, Yasha Rohwer, Ronald Sandler, Maxwell J. Scott, Riley Taitingfong, & Laurie Zoloth
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Journal Article
The stigma of seriousness: Views of genome editing scientists and policy professionals on defining serious disease
by Margaret Waltz, Michael A Flatt, & R Jean Cadigan
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Latest Webinar
June 2025 EFF: Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices
As large-scale genomic data sets are increasingly linked, harmonized, and repurposed across studies, questions about how to meaningfully define and compare population descriptors…