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ELSIhub News

Why it is Important to Call Out Racist Language Amongst Our Professional Peers

Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…


Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group

Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…


A Bigger View: Ingrid Holm on Sharing Research Tools

CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on ELSIhub. Dr.…

Trainee Hub

TraineeHub Resources

This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email trainees@…

NIH Announcement

All of Us Research Program Releases Tribal Consultation Final Report

NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities 


The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective

The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…


Developing Resources for DNA Testing at the Border: BorderDNA Working Group

Emerging technological advances and political shifts have expanded immigration-related DNA applications beyond relationship tests within a family for visa petitions. Several U.S. government programs…