ELSI FRIDAY FORUM

ELSI Friday Forum Seminar Series

ABOUT ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET…

Announcement

Announcing a New Special Issue of the Journal of Literature and Science

We are pleased to announce the publication of a special issue of the Journal of Literature and Science, Fictions of Genetic Privacy, co-edited by Jay Clayton and Claire Sisco King. It features nine…

Article

ELSI in Review • July 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2022 set explores regulations for direct-to-consumer…

Article

ELSI in Review • June 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2022 set explores distributed ledger technology in…

Spotlight

Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group

Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…

NIH Announcement

All of Us Research Program Seeks Input on Environmental Health Data

The National Institutes of Health’s All of Us Research Program has issued a Request for Information (RFI) to gather public suggestions on integrating environmental health data into its platform for…

Spotlight

SNAPSHOTs: Expanding ELSI Education

Announcing the Personal Genetics Education Project (pgEd) / CERA Partnership