Spotlight

Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice

The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…

NIH Announcement

NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens  

On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Da

Spotlight

Genetics and Responsibility: More Complicated Than We’d Thought

Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD

ELSIhub News

Why it is Important to Call Out Racist Language Amongst Our Professional Peers

Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…

Spotlight

Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group

Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…

Spotlight

A Bigger View: Ingrid Holm on Sharing Research Tools

CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on ELSIhub. Dr.…

Trainee Hub

TraineeHub Resources

This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email [email protected]