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The video archive includes training videos, recordings of past events from the ELSI Friday Forum series, conference recordings, and other events and series of interest to the ELSI community.

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May 2024 ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned

Health research is undergoing a gradual but transformative shift, where patients and study communities no longer want to be passive participants in health research but active collaborators.

Weighing the Benefits, Harms, and Limitations of Genetic Testing in the Workplace
Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models
The Legal Weaponization of Racialized DNA
Re-envisioning Translational Equity in Pediatric Gene Therapy Research
Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies
Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape
Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study
From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening

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