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Participants in this study by Kraft, Duenas, and Shah said informed consent and interpersonal interactions were most important to their experience of respect in the research context.

Halley and colleagues find that parents of undiagnosed children seeking enrollment in genomic diagnosis research are at risk of “diagnostic misconception”. Although individual diagnosis is a stated goal, this expected benefit is not always realized and others may be impeded by the practical limitations of research, including limited resources for regular communication and limitations on providing medical advice to participants. 

Hendy found that while discussions of the role of genomics in addiction acknowledge social and environmental factors, they are still used to support ideas about the self management of individual risk.