In The Spotlight
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Video
January 2025 EFF: Public-Private Partnerships for Gene Therapies: What Does the Public Get?
Publicly-funded researchers frequently transfer their gene therapy and gene-editing medical research to venture capital-funded startups for clinical… -
News: Article
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your… -
News: Spotlight
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in…
Upcoming Events
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Mar 28
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Apr 7 - 8
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Sep 17 - 19
Conference
Precision Genomics for Human Health
In the Media
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
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MIT Technology Review
Why we need safeguards against genetic discrimination
ELSIhub Featured News
New Publications
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Journal Article
FIGG at 5: An update on U.S. public perspectives on forensic investigative genetic genealogy five years after its introduction to criminal investigations
by Christi J. Guerrini, Jill O. Robinson, Mohamed I. Elsaid, Whitney Bash Brooks, Ariel Levchenko, Stephanie M. Fullerton, Sara Huston, Norah L. Crossnohere, John F. P. Bridges, Jacklyn M. Dahlquist, Louiza Kalokairinou, Diana Madden, CeCe Moore, & Amy L. McGuire
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Journal Article
Money and murder: The dark side of the Asilomar meeting on recombinant DNA
by Matthew Cobb
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Journal Article
Parents' perceptions of the utility of genetic testing in the NICU
by Katharine Press Callahan, Rebecca Mueller, Steven Joffe, Cara Skraban, Nancy Spinner, Karen Crew, Justin Clapp, David Munson, & Chris Feudtner
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Latest Webinar
AI in Genomics and Genetic Counseling: Ethical, Legal and Social Issues
ELSI • GC Exchange, hosted by The Jackson Laboratory for Genomic Medicine, is an educational series designed for genetic counselors.