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Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
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Announcing the 5th ELSI Congress Special Issue of the American Journal of Bioethics
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Joy Boyer, Reflections on a Career in ELSI
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The Genomics of PTSD Risk: Scientific and Ethical Perspectives
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The New York Times
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times
Untangling Rosalind Franklin’s Role in DNA Discovery, 70 Years On
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New Publications
A world of difference: The fundamental opposition between transhumanist “welfarism” and disability advocacy
Levin critiques the "welfarist account" of disability, which issues a moral mandate to prospective parents to maximize the capacities (e.g., cognitive ability) of their future children through genetic manipulation.
Advancing understanding of inequities in rare disease genomics
Serrano and colleagues describe an implementation protocol designed to address inequities in access to genomic research for individuals with rare disease.
Exposing the hazards of teaching 19th century genetic science
McCartney argues that science curriculum focused on outdated genetic models, such as Mendelian inheritance and behavioral genetics, amplifies genetic essentialism and advocates for teaching contemporary genetics concepts.
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