In The Spotlight
Event: Workshop
TraineeHub: Publishing in Bioethics Journals – What You Need to Know
Video: Webinar
Value and Values in Payment for Gene Therapies
News: Announcement
CERA Co-Director Mildred Cho Recognized for Outstanding Mentorship with Inaugural Bernard Lo, MD Award in Bioethics
News: Announcement
Announcing a New Special Issue of the Journal of Literature and Science
Upcoming Events
ELSI Friday Forum
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-…
Workshop
TraineeHub: Publishing in Bioethics Journals – What You Need to Know
ELSIhub Featured News
New Publications
A game theoretic approach to balance privacy risks and familial benefits
Guo and colleagues use a game theoretic approach to model how consumers of third-party interpretation (TPI) services may act as they weigh the benefits of sharing their genetic data against the privacy risks.
How many billions is enough? Prioritizing profits over patients with cystic fibrosis
McGarry and colleagues criticize Vertex pharmaceuticals, the sole manufacturer of cystic fibrosis transmembrane conductance regulator (CFTR) modulators, for drastically decreasing its copayment assistance programs and call for specific measures to protect access to life-changing medications for CF patients.
Wrestling with public input on an ethical analysis of scientific research
Martschenko and colleagues describe an initiative to engage members of the public in normative discussions about social and behavioral genomics (SBG) research, summarize the perspectives of a community sounding board on the risks and potential benefits of SBG research, and provide recommendations for other bioethicists who are interested in engaging communities in their research.
Latest