In The Spotlight
Video: Webinar
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
Video: Webinar
Population Descriptors in Genomic Research: Applying the NASEM Recommendations
News: Spotlight
Joy Boyer, Reflections on a Career in ELSI
Upcoming Events
Conference
2023 PRIM&R Annual Conference (PRIMR23)
Conference
Emerging Portable Technology for Neuroimaging Research in New Field…
ELSI Friday Forum
ELSI Friday Forum | Affirming Sex and Gender Diversity in Genetics…
Webinar
Informational Session on the Renewed ELSI Funding Opportunities
In the Media
The New York Times
Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients
The New York Times
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
ELSIhub Featured News
New Publications
Patient priorities for fulfilling the principle of respect in research: Findings from a modified Delphi study
Participants in this study by Kraft, Duenas, and Shah said informed consent and interpersonal interactions were most important to their experience of respect in the research context.
An expert panel discussion embedding ethics and equity in artificial intelligence and machine learning infrastructure
This roundtable moderated by Simmons explores several ways to enhance ethics and equity in AIs/ML including the study of workflow impacts, increased transparency about funding and financial incentives for these systems, and stakeholder engagement at all stages of development and implementation.
Ethical aspects of pediatric genetic care: Testing and treatment
Ormond, Blasimme, and Vayena review several ethical issues in pediatric genetic care, including those associated with unsolicited findings and surrogate decision making.
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