Type

Journal Article

Broad consent for research With biological samples: Workshop conclusions

View online source

Authors:

Christine Grady

Lisa Eckstein

Ben Berkman

Dan Brock

Robert Cook-Deegan

Stephanie M. Fullerton

Hank Greely

Mats G. Hansson

Sara Hull

Scott Kim

Bernie Lo

Rebecca Pentz

Laura Rodriguez

Carol Weil

Benjamin S. Wilfond

David Wendler

Year:

2015

Am J Bioethics

Description

Duke University Center for Public Genomics. Grant number(s): P50HG003391

Return to Search Results

Share

Related Scholars

Related Publications

Book

Here is a human being: At the dawn of personal genomics
Journal Article

Building a better innovation system: Combining facially neutral patent standards with regulations of end product therapeutics
Journal Article

The bane of "boilerplate" language in research consent forms: Ensuring consent forms promote autonomous authorization
Journal Article

The intimacies of strangers
Journal Article

What will "All of Us" mean for each of us
Journal Article

View from the bench: Patents, research and material transfers
Report

Overcoming the impasse on intellectual property and climate change at the UNFCCC: A way forward
Journal Article

Restoring balance: A consensus statement on the protection of vulnerable research participants
Journal Article

Genetic testing for Alzheimer’s and long-term care insurance
Journal Article

Genetic testing for Alzheimer's and long-term care insurance
Journal Article

Business and breakthrough: Framing (expanded) genetic carrier screening for the public
Journal Article

Concerns about justification for fetal genome sequencing
Journal Article

Keeping score, strengthening policy and fighting bad actors over access to research tools
Journal Article

Keeping score, strengthening policy, and fighting bad actors over access to research tools
Journal Article

Should failure to disclose significant financial conflicts of interest be considered research misconduct?
Journal Article

Community crystal gazing
Journal Article

Building a dossier on the cheap: Integrating distributed personal data resources under cost constraints
Journal Article

Systematizing genome privacy research: A privacy enhancing technologies perspective
Journal Article

A reverse notice and takedown regime to enable public interest uses of technically protected copyrighted works
Journal Article

Only connect: Personal genomics and the future of American medicine
Journal Article

Variants of uncertain significance in BRCA: A harbinger of ethical and policy issues to come?
Journal Article

Offering aggregate results to participants in genomic research: Opportunities and challenges
Journal Article

Offering aggregate results to participants in genomic research: Benefits and challenges
Journal Article

Sharing by design: Data and decentralized commons
Journal Article

Patent validity across the Executive Branch: Ex ante foundations for policy development
Journal Article

Gene patenting – the Supreme Court finally speaks
Journal Article

Gene patenting--the Supreme Court finally speaks
Journal Article

Manufacturing barriers to biologics competition and innovation
Book

Tissue economies: Blood, organs and cell lines in late capitalism
Journal Article

An assessment of a shortened consent form for the storage and research use of residual newborn screening blood spots

+