Returning pleiotropic results from genetic testing to patients and research participants

View online source

Authors:

Kocarnik, J. M.

Fullerton, S. M.

Year:

2014

JAMA

Description

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R25CA94880, T32CA09168, U01HG006507, U01HG007307, P50HG003374, U01HG004790

Return to Search Results

Related Publications

Journal Article

Introduction: Return of research results: What about the family?
Journal Article

Return of secondary genomic findings vs patient autonomy: Implications for medical care
Journal Article

Respecting the value-laden nature of participant preferences: AI, digital phenotyping, and psychiatry
Journal Article

Incorporating research burden and utility considerations as limiting factors in a framework for returning IRR
Journal Article

Navigating the ethical maze in digital health research
Journal Article

Personalized roadmaps for returning results from digital phenotyping
Journal Article

Psychiatry, ethics, and digital phenotyping: Moral challenges and considerations for returning mental health research results to college students
Journal Article

Contending with real and perceived intrusiveness in digital phenotyping research
Journal Article

Potential iatrogenic effects of returning individual research results from digital phenotyping in psychiatry
Journal Article

Developing a process for returning medically actionable genomic variants to Latino patients in a federally-qualified health center
Journal Article

Should researchers offer results to family members of cancer biobank participants? A mixed-methods study of proband and family preferences
Journal Article

Discordance in selected designee for return of genomic findings in the event of participant death and estate executor
Journal Article

Use of metaphors about exome and whole genome sequencing
Journal Article

"Is that something that should concern me?": A qualitative exploration of parent understanding of their child's genomic test results
Journal Article

Attitudes toward return of genetic research results to relatives, including after death: Comparison of cancer probands, blood relatives, and spouse/partners.
Journal Article

Researchers’ perspectives on return of individual genetics results to research participants: A qualitative study
Journal Article

BRCA1 screening in a woman with breast cancer: A patient's perspective with commentary
Journal Article

Neutral, negative, or negligible? Changes in patient perceptions of disease risk following receipt of a negative genomic screening result
Journal Article

Effects of health literacy skills, educational attainment, and level of melanoma risk on responses to personalized genomic testing
Journal Article

Return of research results from pharmacogenomic versus disease susceptibility studies: What's drugs got to do with it?
Journal Article

Variations in the referral pattern for genetic counseling of patients with early-onset breast cancer: A population-based study in southern Sweden
Journal Article

Clinician-stakeholders' perspectives on using patient portals to return Lynch Syndrome screening results
Journal Article

You never call, you never write: Why return of 'omic' results to research participants is both a good idea and a moral imperative
Journal Article

Views on genomic research result delivery methods and informed consent: A review
Journal Article

BRCA1 testing: Genetic counseling protocol development and counseling issues
Journal Article

Utilization of breast cancer screening in a clinically based sample of women after BRCA1/2 testing
Journal Article

Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience

Returning pleiotropic results from genetic testing to patients and research participants

Authors:

Year:

Description

Share

Related Publications

Newsletter