Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
11 - 20 of 25 Research Tools
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Semi-structured Interview Guide, Recall by Genotype (RbG) Research
Year: 2018This topic guide can be used to interview research participants on their perceptions of recall by genotype research, which recruits on the basis of genotype.
Research Population: AdultsContact: [email protected] -
Semi-structured Interview Guide, International Health Research Collaborations
Year: 2017This interview guide was developed to elicit African researchers experiences in international health research consortia; perceived benefits and risks of participation, and their recommendations for
Research Population: Genomics ResearchersContact: [email protected] -
Family Health History Interview Guide
Year: 2016Chen and colleagues developed this qualitative interview guide to explore the topic of family health history with Chinese Americans in the United States.
Research Population: AdultsContact: [email protected] -
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
Year: 2020This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients.
Research Population: Genetic Health Professionals -
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
Year: 2018This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP.
Research Population: Adults -
Semi-structured Interview Guide: Experiences with Personal Genomic Testing
Year: 2020This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT).
Research Population: Adults -
Newborn Whole Genome Sequencing Scenarios
Year: 2013Goldenberg, Dodson, Davis, & Tarini created two scenarios to assess parents’ interest in whole-genome sequencing (WGS) for newborns.
Research Population: ParentsContact: [email protected] -
Semi-Structured Interview Guide: Storage and Use of Residual Newborn Bloodspots
Year: 2014Botkin and colleagues created this semi-structured interview guide to uncover what prospective parents are interested in knowing about the practice of retaining residual newborn screening bloodspot
Research Population: ParentsContact: [email protected] -
eMERGE III Health Care Provider Work Group: Pre-return of Results Physician Interview Guide
Year: 2019This semi-structured interview guide provides physicians with scenarios in which adult and pediatric patients receive unsolicited genomic results and elicits their views about the need for provider
Research Population: PhysiciansContact: [email protected] -
Gene Modification Therapy Scenarios for Parents of People with Down Syndrome
Year: 2018Michie and Allyse developed five scenarios that describe existing and hypothetical interventions for symptoms of Down syndrome (DS): 1) prenatal physical intervention, 2) prenatal cognitive interve
Research Population: Parents