Interview Guide

Semi-structured Interview Guide, Recall by Genotype (RbG) Research

Author(s):

Minion, Joel T.

Butcher, Frances

Timpson, Nicholas

Murtagh, Madeleine J.

Year:

2018

This topic guide can be used to interview research participants on their perceptions of recall by genotype research, which recruits on the basis of genotype. Topics include understandings of RbG research, expectations about recruitment, and preferences for the communication of research findings.

Research Population:

Adults

Citation:

Minion, J. T., Butcher, F., Timpson, N., & Murtagh, M. J. (2018). The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participants. Plos One, 13(8), e0202502.

https://doi.org/10.1371/journal.pone.0202502

Contact:

[email protected]

Return to Search Results

View online source

Related Research Tools

Psychometric instrument

CSER Phase 2 - Feelings about Genomic Testing Results (FACToR) – Parent

This post-return of child genetic test results survey for parents assesses the psychosocial impact of receiving genomic findings by measuring how…
Survey

CSER Phase 2 Provider Return of Results Follow-up #1 Survey

CSER Phase 2 Provider Return of Results Follow-up #1 Survey is administered 0-6 weeks post-return of results to providers of research participants…
Survey

CSER Phase 2 Provider Return of Results Follow-up #2 Survey

CSER Phase 2 Provider Return of Results Follow-up #2 Survey is administered at 5-7 months post-return of results, regardless of whether the…
Survey

Preferences for the Return of Pediatric Biobank Results Survey

Christensen and colleagues developed a survey to enable parents of pediatric patients to set preferences for return of individual results from…
Survey

CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey

The Patient-Initiated Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP)…
Survey

CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey

The Follow Through on Medical Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (…
Screening instrument

Genetic Literacy Fast Test (GeneLiFT)

The Genetic Literacy Fast Test (GeneLiFT) is a self-administered genetic literacy test for individuals who intend to undergo genetic screening…
Survey

Preferences and Expectations for Return of Individual Research Results Survey

Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including…
Survey

Choice Based Conjoint (CBC) Survey, Preferences for Information About Incidential Findings

Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results…
Scenarios

Scenarios on Genetic Research, Testing, and Return of Results

Hiratsuka and colleagues developed these six scenarios for use in small group discussions focused on their implications. Scenarios are nonpartisan…
Psychometric instrument

Trust in Medical Researchers Scale

Mainous and colleagues report the development and validation of the 12-item Trust in Medical Resesearchers Scale. This scale is designed to be…