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  • Codebook: Assessment of a Video and Survey about Expanded Carrier Screening

    Author(s): Erin Rothwell
    Year: 2017

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making.

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Codebook: Meaning of Screening

    Author(s): Erin Rothwell
    Year: 2016

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study.

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: Assessing the Financial Burden of Genetic Testing

    Author(s): Erin Rothwell
    Year: 2018

    Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing.

    Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: Assessment of a Video and Survey about Expanded Carrier Screening

    Author(s): Erin Rothwell
    Year: 2017

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making.

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: Meaning of Screening

    Author(s): Erin Rothwell
    Year: 2015

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study.

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Focus Group Guide, Perceived Need for Research Ethics Consultation

    Author(s): McCormick, Jennifer B., Boyce, Angie M., Cho, Mildred K.
    Year: 2009

    This focus group guide (see the methods, focus groups section of the linked article) was designed to assess interest in a research ethics consultation service.

    This focus group guide (see the methods, focus groups section of the linked article) was designed to assess interest in a research ethics consultation service. It includes a set of questions for biomedical researchers designed to assess their perceptions of ethical and social questions related to their research, ideas about the role of bioethicists, the kinds of research that is controversial, the role of scientists in dealing with controversy, and other topics.

    Research Population: Biomedical Researchers
    Citation:

    McCormick, J. B., Boyce, A. M., & Cho, M. K. (2009). Biomedical scientists' perceptions of ethical and social implications: is there a role for research ethics consultation? PLoS One, 4(3), e4659.

    Contact: [email protected]