Codebook: Assessment of a Video and Survey about Expanded Carrier Screening
Author(s):
Year:
This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.
University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037
Research Population:
Related Research Tools
-
Utah Genome Project - Informed Consent Form
<p>This consent form was used for the Utah Genome Project. The form describes the specific protected health information that would be…
-
Codebook: Alternate Understandings of Genetic Causation
The aim of this project was to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior…
-
Codebook: CRiTICS - Video Coding
Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening…
-
Codebook: ECS - Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes
REDCap codebook for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development…
-
Codebook: Improving Understanding about Pre-Implantation Genetic Screening (PGS) with In Vitro Fertilization
The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro…
-
Codebook: Newborn Screening Education
This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in…
-
Codebook: Newborn Screening Residuals
This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical…
-
Codebook: Pediatricians' Understanding of Children's Health Rights
This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The…
-
Codebook: The Influence of Genetic Testing on Redirection of Care in the NICU
Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The REDCap…
-
Codebook: Assessing the Financial Burden of Genetic Testing
Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The REDCap codebook for this study outlines each data…
-
Codebook: Assessment of the Reading of the Informed Consent Play
Rothwell and colleagues assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the…
-
Codebook: Meaning of Screening
This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled…
-
Codebook: UCEER - SDSU Mapping the Genetics Communication Circuit
This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters,…
-
Codebook: Utah Genome Project - Informed Consent
This project evaluated simplified tools used to inform the public around the consent process. The REDCap codebook for this study outlines each…
-
Codebook: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research
Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen…
-
Codebook: Willingness to Pay (WTP)
Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic…
-
Codebook: ENLITE - Evaluating the Benefits and Limitations of Next Generation DTC
Kilbride and colleagues explored public perceptions and knowledge of direct-to-consumer genetic testing. The REDCap codebook for this study…
-
Data Dictionary: Alternate Understandings of Genetic Causation
The aim of this project is to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior…
-
Data Dictionary: CRiTICS - Video Coding
Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening…
-
Data Dictionary: ECS - Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes
REDCap data dictionary for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational…
-
Data Dictionary: Improving Understanding about Pre-Implantation Genetic Screening (PGS) with In Vitro Fertilization
The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro…
-
Data Dictionary: Newborn Screening Education
This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in…
-
Data Dictionary: Newborn Screening Residuals
This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical…
-
Data Dictionary: Pediatricians' Understanding of Children's Health Rights
This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The…
-
Data Dictionary: The Influence of Genetic Testing on Redirection of Care in the NICU
Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The data…
-
Data Dictionary: Assessing the Financial Burden of Genetic Testing
Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the…
-
Data Dictionary: Assessment of a Video and Survey about Expanded Carrier Screening
This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The data…
-
Data Dictionary: Assessment of the Reading of the Informed Consent Play
Rothwell and colleagues assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the…
-
Data Dictionary: Meaning of Screening
This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled…
-
Data Dictionary: UCEER - SDSU Mapping the Genetics Communication Circuit
This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters,…