Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.

Search

Refine Your Search:

Document Type

Research Population

Validated

31 - 35 of 35 Research Tools

Search Help

  • Codebook: Assessment of a Video and Survey about Expanded Carrier Screening

    Author(s): Erin Rothwell
    Year: 2017

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making.

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Codebook: Meaning of Screening

    Author(s): Erin Rothwell
    Year: 2016

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study.

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: Assessing the Financial Burden of Genetic Testing

    Author(s): Erin Rothwell
    Year: 2018

    Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing.

    Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: Assessment of a Video and Survey about Expanded Carrier Screening

    Author(s): Erin Rothwell
    Year: 2017

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making.

    This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: Meaning of Screening

    Author(s): Erin Rothwell
    Year: 2015

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study.

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source