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Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
31 - 38 of 38 Research Tools
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Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
Year: 2023Show moreThe Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the…
Research Population: AdultsValidation(s):Ashida, S., Marcum, C. S., & Koehly, L. M. (2017). Unmet expectations in Alzheimer’s family caregiving: Interactional characteristics associated with perceived under-contribution. The Gerontologist, 58(2), e46–e55.
Koehly, L. M., Ashida, S., Sumrall, S., & Hyman, S. (2023). Caregiving interactions and behaviors in the care of children with rare genetic or undiagnosed conditions. Journal of Child and Family Studies, 32, 3501–3514.
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Hierarchical Mapping Technique
Year: 1986Show moreThe Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric…
Research Population: AdultsValidation(s):Antonucci, T. C., Ajrouch, K. J., & Webster, N. J. (2019). Convoys of social relations: Cohort similarities and differences over 25 years. Psychology and Aging, 34(8), 1158-1169.
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Perceptions of Uncertainties in Genome Sequencing (PUGS) Scale
Year: 2017Show moreThe Perceptions of Uncertainties in Genome Sequencing (PUGS) Scale was developed to evaluate perceived uncertainties in genome sequencing.
Research Population: AdultsValidation(s):Biesecker, B. B., Woolford, S. W., Klein, W. M. P., Brothers, K. B., Umstead, K. L., Lewis, K. L., Biesecker, L. G., & Han, P. K. J. (2017). PUGS: A novel scale to assess perceptions of uncertainties in genome sequencing. Clinical Genetics, 92(2), 172-179.
Umstead, K. L., Campbell, R., Napier, C. E., Bartley, N., Best, M. C., Butow, P. N., Biesecker, B. B. Further validation of the Perceptions of Uncertainties in Genome Sequencing scale among patients with cancer undergoing tumor sequencing. (2022). Clinical Genetics, 102(2), 110-116.
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Views on Science—Technology—Society (VOSTS)
Year: 1992Show moreAikenhead and Ryan developed the Views on Science—Technology—Society (VOSTS) instrument to assess high school students' views and preconceptions on the epistemology of science.
Research Population: StudentsValidation(s):Ryan, A. G., & Aikenhead, G. S. (1992). Students' preconceptions about the epistemology of science. Science Education, 76(6), 559-580.
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GENEtic Utility (GENE-U) Scale
Year: 2024Show moreSmith and colleagues developed the GENEtic Utility (GENE-U) scale to assess the perceived utility of genetic screening from the perspective of those who are undergoing risk-based or population-…
Research Population: Adults, ChildrenValidation(s):Smith, H. S., Rubanovich, C. K., Robinson, J. O., Levchenko, A. N., Classen, S. A., Malek, J., Buchanan, A. H., Biesecker, B., Brothers, K. B., Wilfond, B. S., Rini, C., Bloss, C. S., McGuire, A. L., & Knight, S. J. (2024). Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genetics in Medicine, 26(11), Article 101240.
Smith, H. S., Rubanovich, C. K., Robinson, J. O., Levchenko, A. N., Classen, S. A., Malek, J., Biesecker, B., Brothers, K. B., Wilfond, B. S., Rini, C., Knight, S. J., McGuire, A. L., & Bloss, C. S. (2024). Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing. Genetics in Medicine, 26(8), Article 101146.
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Clinician-reported Genetic Testing Utility Index (C-GUIDE)
Year: 2025Show moreHayeems and colleagues developed The Clinician-reported Genetic Testing Utility Index (C-GUIDE) to define and quantify the clinical utility of genetic testing.
Research Population: CliniciansValidation(s):Hayeems, R. Z., Luca, S., Xiao, B., Boswell-Patterson, C., Lavin Venegas, C., Abi Semaan, C. R., Kolar, T., Myles-Reid, D., Chad, L., Dyment, D., Boycott, K. M., Lazier, J., Ungar, W. J., & Armour, C. M. (2025). The Clinician-reported Genetic Testing Utility Index (C-GUIDE) for Prenatal Care: Initial evidence of content and construct validity. Genetics in Medicine, 27(1), Article 101306.
Hayeems, R. Z., Luca, S., Ungar, W. J., Venkataramanan, V., Tsiplova, K., Bashir, N. S., Costain, G., Inglese, C., McNiven, V., Quercia, N., Shugar, A., Yoon, G., Cytrynbaum, C., Dupuis, L., Shao, Z., Hewson, S., Shuman, C., Aul, R., Liston, E., Babul-Hirji, R., Bushby, A., Pullenayegum, E., Chad, L., & Meyn, M. S. (2022). The clinician-reported genetic testing utility index (C-GUIDE): Preliminary evidence of validity and reliability. Genetics in Medicine, 24(2), 430–438.
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Attitudes Toward Genomics and Precision Medicine (AGPM)
Year: 2025Show moreDuBois and colleagues developed the Attitudes Toward Genomics and Precision Medicine (AGPM), a novel measure which evaluates attitudes toward activities such as genetic testing, collecting informat
Research Population: AdultsCitation:DuBois, J. M., Mozersky, J., Antes, A., English, T., Parsons, M. V., & Baldwin, K. (2021). Attitudes toward genomics and precision medicine. Journal of Clinical and Translational Science, 5(1), Article e120. https://doi.org/10.1017/cts.2021.774
Validation(s):- DuBois, J. M., Mozersky, J., Antes, A., English, T., Parsons, M. V., & Baldwin, K. (2021). Attitudes toward genomics and precision medicine. Journal of Clinical and Translational Science, 5(1), Article e120. https://doi.org/10.1017/cts.2021.774
- Anghel, E., Pineros-Leano, M., McDonald, I. R., Dwyer, A. A. (2025). Psychometric properties of a culturally adapted Spanish version of the Attitudes Toward Genomics and Precision Medicine instrument. Public Health Genomics. Advance online publication. https://doi.org/10.1159/000546101
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Genetic Technologies Questionnaire (GTQ)
Year: 2022Küchenhoff and colleagues created the Genetic Technologies Questionnaire (GTQ), a scale to measure ethical judgements about genetic technologies.
Research Population: AdultsCitation:Küchenhoff, S., Doerflinger, J. & Heinzelmann, N. (2022). The genetic technologies questionnaire: Lay judgments about genetic technologies align with ethical theory, are coherent, and predict behaviour. BMC Medical Ethics, 23, Article 54. https://doi.org/10.1186/s12910-022-00792-x
Validation(s):- Küchenhoff, S., Doerflinger, J. & Heinzelmann, N. (2022). The genetic technologies questionnaire: Lay judgments about genetic technologies align with ethical theory, are coherent, and predict behaviour. BMC Medical Ethics, 23, Article 54. https://doi.org/10.1186/s12910-022-00792-x
Contact: [email protected]