Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
41 - 50 of 54 Research Tools
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Baseline Impact of Personal Genomics (PGen) Study Survey
Year: 2014Carere and colleagues created the Baseline Impact of Personal Genomics (PGen) Study Survey to collect information about why participants chose to pursue direct-to-consumer personal genomic testing
Research Population: AdultsContact: [email protected] -
2 Week Follow-Up Personal Genomics (PGen) Study Survey
Year: 2014Carere and colleagues created the 2 Week Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 2 weeks af
Research Population: AdultsContact: [email protected] -
6 Month Follow-Up Personal Genomics (PGen) Study Survey
Year: 2014Carere and colleagues created the 6 Month Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 6 months
Research Population: AdultsContact: [email protected] -
6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey
Year: 2014Carere and colleagues created the 6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey, a short 5 minute survey sent to study participants who had not responded to the 6 Month Foll
Research Population: AdultsContact: [email protected] -
REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale
Year: 2010Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD).
Research Population: AdultsValidation(s):- Chung, W, W., Chen, C. A., Cupples, L. A., Roberts, J. Scott, Hiraki, S. C., Nair, A. K., Green, R. C., & Stern, R. A. (2009). A new scale measuring psychologic impact of genetic susceptibility testing for Alzheimer disease. Alzheimer Disease & Associated Disorders, 23(1), 50-56.
Contact: [email protected] -
DNA Ancestry Testing Survey
Year: 2021Rubanovich and colleagues created the DNA Ancestry Testing Survey to examine the impact of DNA ancestry test results on perception of ethnic and racial identities.
Research Population: AdultsContact: [email protected] -
San Diego Blood Bank Survey
Year: 2018Morton, Bixenman, & Wellis designed this fifteen-item survey to measure blood donors' interest in participating in a hypothetical study, similar to the All of Us Research Program, which se
Research Population: AdultsContact: [email protected] -
Health Data Exploration Survey Questions (Individuals)
Year: 2015To understand challenges involved in the use of personal health data (PHD) in research, Bietz and colleagues created Health Data Exploration Survey Questions (Individuals) that examines the experie
Research Population: Adults -
Health Data Exploration Survey Questions (Researchers)
Year: 2015Bietz and colleagues created the Health Data Exploration Survey Questions (Researchers) to examine the experiences with and attitudes about self-tracking data among researchers who could potentiall
Research Population: Adults -
California Consumers’ Views of Data Sharing for Healthcare And Research Survey
Year: 2015Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and reses
Research Population: Adults