Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
41 - 50 of 82 Research Tools
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Choice Based Conjoint (CBC) Survey, Preferences for Information About Incidential Findings
Year: 2017Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different attrib
Research Population: AdultsContact: [email protected] -
Consent Preferences of UK Research Volunteers for Genetic and Clinical Studies Survey
Year: 2015This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research…
Research Population: AdultsContact: [email protected] -
Police Access to Genetic Genealogy Databases Survey
Year: 2018This 20-item survey by Guerrini and colleagues can be used to assess public opinion on police access to genetic genealogy databases.
Research Population: AdultsContact: [email protected] -
Semi-structured Interview Guide, Recall by Genotype (RbG) Research
Year: 2018This topic guide can be used to interview research participants on their perceptions of recall by genotype research, which recruits on the basis of genotype.
Research Population: AdultsContact: [email protected] -
Public Attitudes Toward Genetic Modification in Dairy Cattle, Survey
Year: 2019This survey can be used to collect respondent characteristics, attitudes about the genetic modification (GM) of cattle, the perceived effectiveness of GM modifications, knowledge of GM, and attitud
Research Population: AdultsContact: [email protected] -
Semi-structured Interview Guide, International Health Research Collaborations
Year: 2017This interview guide was developed to elicit African researchers experiences in international health research consortia; perceived benefits and risks of participation, and their recommendations for
Research Population: Genomics ResearchersContact: [email protected] -
Family Health History Interview Guide
Year: 2016Chen and colleagues developed this qualitative interview guide to explore the topic of family health history with Chinese Americans in the United States.
Research Population: AdultsContact: [email protected] -
Willingness to Participate in a Precision Medicine Cohort Study, Survey
Year: 2016This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of infor
Research Population: AdultsContact: [email protected] -
Genomic Information and the Right Not to Know Questionnaire
Year: 2018Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context.
Research Population: AdultsContact: [email protected] -
Genetics Pre-Course Survey
Year: 2013Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine prior to taking an 8-week course on genomics and personalized medicine
Research Population: StudentsContact: [email protected]