Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
51 - 60 of 78 Research Tools
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Awareness and Purpose of Genetic Counseling Survey
Year: 2013Maio and colleagues designed this survey to measure awareness and perceptions of the purpose of genetic counseling.
Research Population: AdultsContact: [email protected] -
Attitudes Toward Prenatal Genetic Screening and Testing in Twin Pregnancies Survey
Year: 2018Reese and colleagues designed this survey to collect information on attitudes toward prenatal genetic screening and testing, including changes in attitude toward or uptake of testing related to the
Research Population: AdultsContact: [email protected] -
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
Year: 2020This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients.
Research Population: Genetic Health Professionals -
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
Year: 2018This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP.
Research Population: Adults -
The IntegratedEthics Staff Survey™ (IESS)
Year: 2013This survey, created by Pearlman and colleagues, measures the attitudes of staff towards ethical practices in multiple areas of a healthcare organizations.
Research Population: AdultsValidation(s):- Pearlman, R. A., Bottrell, M. M., Altemose, J., Foglia, M. B., & Fox, E. (2013). The IntegratedEthicsTM Staff Survey: A tool to evaluate and improve ethical practices in health care. AJOB Primary Research, 4(1), 7-19.
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Semi-structured Interview Guide: Experiences with Personal Genomic Testing
Year: 2020This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT).
Research Population: Adults -
Survey, Support for Government Regulation of GMO Foods and Percived Risk of GMO Products
Year: 2016This survey assesses support for government regulation of GMO foods and percived risk of GMO products.
Research Population: Adults -
Semi-Structured Interview Guide: Storage and Use of Residual Newborn Bloodspots
Year: 2014Botkin and colleagues created this semi-structured interview guide to uncover what prospective parents are interested in knowing about the practice of retaining residual newborn screening bloodspot
Research Population: ParentsContact: [email protected] -
Baseline Impact of Personal Genomics (PGen) Study Survey
Year: 2014Carere and colleagues created the Baseline Impact of Personal Genomics (PGen) Study Survey to collect information about why participants chose to pursue direct-to-consumer personal genomic testing
Research Population: AdultsContact: [email protected] -
2 Week Follow-Up Personal Genomics (PGen) Study Survey
Year: 2014Carere and colleagues created the 2 Week Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 2 weeks af
Research Population: AdultsContact: [email protected]