Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
31 - 40 of 57 Research Tools
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Police Access to Genetic Genealogy Databases Survey
Year: 2018This 20-item survey by Guerrini and colleagues can be used to assess public opinion on police access to genetic genealogy databases.
Research Population: AdultsContact: [email protected] -
Semi-structured Interview Guide, Recall by Genotype (RbG) Research
Year: 2018This topic guide can be used to interview research participants on their perceptions of recall by genotype research, which recruits on the basis of genotype.
Research Population: AdultsContact: [email protected] -
Public Attitudes Toward Genetic Modification in Dairy Cattle, Survey
Year: 2019This survey can be used to collect respondent characteristics, attitudes about the genetic modification (GM) of cattle, the perceived effectiveness of GM modifications, knowledge of GM, and attitud
Research Population: AdultsContact: [email protected] -
Family Health History Interview Guide
Year: 2016Chen and colleagues developed this qualitative interview guide to explore the topic of family health history with Chinese Americans in the United States.
Research Population: AdultsContact: [email protected] -
Willingness to Participate in a Precision Medicine Cohort Study, Survey
Year: 2016This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of infor
Research Population: AdultsContact: [email protected] -
Genomic Information and the Right Not to Know Questionnaire
Year: 2018Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context.
Research Population: AdultsContact: [email protected] -
Awareness and Purpose of Genetic Counseling Survey
Year: 2013Maio and colleagues designed this survey to measure awareness and perceptions of the purpose of genetic counseling.
Research Population: AdultsContact: [email protected] -
Attitudes Toward Prenatal Genetic Screening and Testing in Twin Pregnancies Survey
Year: 2018Reese and colleagues designed this survey to collect information on attitudes toward prenatal genetic screening and testing, including changes in attitude toward or uptake of testing related to the
Research Population: AdultsContact: [email protected] -
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
Year: 2018This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP.
Research Population: Adults -
The IntegratedEthics Staff Survey™ (IESS)
Year: 2013This survey, created by Pearlman and colleagues, measures the attitudes of staff towards ethical practices in multiple areas of a healthcare organizations.
Research Population: AdultsValidation(s):- Pearlman, R. A., Bottrell, M. M., Altemose, J., Foglia, M. B., & Fox, E. (2013). The IntegratedEthicsTM Staff Survey: A tool to evaluate and improve ethical practices in health care. AJOB Primary Research, 4(1), 7-19.