Research Ethics | ELSIhub

Research Ethics

Direct-to-Consumer genomics and research ethics: Should a more robust informed consent process be included?

Read more about Direct-to-Consumer genomics and research ethics: Should a more robust informed consent process be included?

Drug development: Assessment of pharmacogenetic studies by Spanish research ethics committees

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Ethical Issues in Pediatric Gene Therapy Clinical Trials

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The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations.

Marianna J. Bledsoe

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Research Ethics

Secondary research use of data and biospecimens

genomic data sharing

Jessica Mozersky

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Qualitative Methods

Bioethical Issues

Alzheimer's disease risk

Research Ethics

Alison Bateman-House

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Research Ethics

Clinical Trials

Pharmaceutical ethics

Mark A. Rothstein

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genetic nondiscrimination law

genetic privacy

public health ethics

Research Ethics

Research practice and participant preferences: The growing gulf

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Assessing the privacy risks of data sharing in genomics

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Genetic research and biobanks

Read more about Genetic research and biobanks