Policy | ELSIhub

Policy

Select ethical aspects of next-generation sequencing tests for newborn screening and diagnostic evaluation of critically ill newborns

Read more about Select ethical aspects of next-generation sequencing tests for newborn screening and diagnostic evaluation of critically ill newborns

ACMG SF v3.0 list for reporting of secondary findings in clinical exome and genome sequencing: A policy statement of the American College of Medical Genetics and Genomics (ACMG)

Read more about ACMG SF v3.0 list for reporting of secondary findings in clinical exome and genome sequencing: A policy statement of the American College of Medical Genetics and Genomics (ACMG)

Ethical, legal, and social issues (ELSI) of responsible data sharing involving children in genomics: A systematic literature review of reasons

Read more about Ethical, legal, and social issues (ELSI) of responsible data sharing involving children in genomics: A systematic literature review of reasons

Data management of sensitive human proteomics data: Current practices, recommendations and perspectives for the future

Read more about Data management of sensitive human proteomics data: Current practices, recommendations and perspectives for the future

‘Inspired Choice’: Biden Appoints Sociologist Alondra Nelson to Top Science Post

Read more about ‘Inspired Choice’: Biden Appoints Sociologist Alondra Nelson to Top Science Post

Nidhi Subbaraman

Designing an agricultural genome program

Read more about Designing an agricultural genome program

Reply to Hook and Lowden: The definition and implications of genetic discrimination

Read more about Reply to Hook and Lowden: The definition and implications of genetic discrimination

Pharmacogenetic testing: Not as simple as it seems

Read more about Pharmacogenetic testing: Not as simple as it seems

Policy Statements, European Society of Human Genetics

Read more about Policy Statements, European Society of Human Genetics

The Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG), chaired by Francesca Forzano, discusses and issues statements on the responsible translation of technological developments in human genetics.

Statement Archive, American Society of Human Genetics

Read more about Statement Archive, American Society of Human Genetics

The Statement Archive of the American Society of Human Genetics is a record of advocacy work by the organization for the purpose of promoting evidence based policies that benefit science, personal and public health, and society. The archive includes analyses of emerging policy issues, comments on pending legislation, and correspondence with legislators.