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GeneWatch UK is a nonprofit policy research and public interest group that monitors the impact of genetic technologies on food, health, agriculture, environment, and society. GeneWatch UK is funded by charitable trusts, the European Commission, commissioned work, and donations and is headed by Executive Director, Helen Wallace.

The Clinical Sequencing Evidence-Generating Research (CSER) consortium is a national multi-site research program funded by the National Human Genome Research Institute (NHGRI), the National Cancer Institute (NCI), and the National Institute on Minority Health and Health Disparities (NIMHD) that assesses the effectiveness of integrating genome sequencing into the clinical care of diverse and medically underserved individuals.

Ellen W. Clayton and Bradley Malin are Co-Directors of the Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), an NIH Center of Excellence in Ethics Research at Vanderbilt University Medical Center. The GetPreCiSe Center integrates a diverse community of interdisciplinary scholars to enhance understanding on the debate about genetic privacy and identity and further inform policy. The center operated from 2016 - 2025.