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  • Coordinates responses to request for education on ethics consultation including developing and providing education materials and education sessions.
  • Collaborates with other Integrated Ethics Staff to develop educational materials and training for VHA staff, including coordination with the Ethics Consultation Co-Chairs, the Preventive Ethics Chair, and the Ethics Leadership Chair (SLVHCS Director)
  • Represent IEPO at VHA meetings, conferences and workshops as approved.

PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed framework of normative values important to families of pediatric patients, including ethical, legal, and social implications (ELSI), which will then be used to elicit preferences for features of sequencing from a nationally representative sample of parents in the US.