The ELSI Friday Forum was held on Friday, April 14, 2023.
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from underserved populations are less likely to receive or accept prenatal genetic services, leading to discordant birth outcomes. We propose to explore the barriers to access and acceptance of prenatal genetic care among women from underserved populations.
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are recognized as both a racial group and a political entity. As of April 2021, the United States Bureau of Indian Affairs federally recognizes 574 tribes as Indian entities that are eligible to receive services from the United States. The U.S.