Technologies do not build trust, people do: A critical response to promises of trust in biobanking through blockchain and generative AI Read more about Technologies do not build trust, people do: A critical response to promises of trust in biobanking through blockchain and generative AI
Challenges to demonstrated consent in biobanking: Technical, ethical, and regulatory considerations Read more about Challenges to demonstrated consent in biobanking: Technical, ethical, and regulatory considerations
Consent at the ease of a click? Technosolutionist fixes cannot replace human relations and solidarity Read more about Consent at the ease of a click? Technosolutionist fixes cannot replace human relations and solidarity
Consent, legal certainty and the need for governance Read more about Consent, legal certainty and the need for governance
On the complexities of enabling demonstrated consent Read more about On the complexities of enabling demonstrated consent
Consent is dead, long live ethical oversight: Integrating ethically sourced data into demonstrated consent models Read more about Consent is dead, long live ethical oversight: Integrating ethically sourced data into demonstrated consent models
Allocation of gene therapy for rare diseases: FDA approved therapy or clinical trial for patients with sickle cell disease? Read more about Allocation of gene therapy for rare diseases: FDA approved therapy or clinical trial for patients with sickle cell disease?
Gene therapy for sickle cell disease: Striking a balance between approved therapies and clinical trials Read more about Gene therapy for sickle cell disease: Striking a balance between approved therapies and clinical trials
Recruitment and informed consent for experimental gene therapy trials when new FDA-approved treatments are not widely available Read more about Recruitment and informed consent for experimental gene therapy trials when new FDA-approved treatments are not widely available
