Conner and colleagues developed this interview guide to better understand primary care providers’ readiness to conduct population-based risk assessment and offer genetic testing for hereditary cancer. Study participants first completed a survey and then participated in a follow-up interview.

Küchenhoff and colleagues created the Genetic Technologies Questionnaire (GTQ), a scale to measure ethical judgements about genetic technologies.

DuBois and colleagues developed the Attitudes Toward Genomics and Precision Medicine (AGPM), a novel measure which evaluates attitudes toward activities such as genetic testing, collecting information on lifestyle, and genome editing.

Smith and colleagues developed the GENEtic Utility (GENE-U) scale to assess the perceived utility of genetic screening from the perspective of those who are undergoing risk-based or population-based screening via genetic screening.

Goranitis and colleagues developed the genomic utility valuation (GUV) scale to enable a standardized measurement and scoring of genomic utility based on 5 key policy priority indicators: clinical, diagnostic, economic, societal, and family utility.

The Perceptions of Uncertainties in Genome Sequencing (PUGS) Scale was developed to evaluate perceived uncertainties in genome sequencing. The scale comprises ten items to assess uncertainties within three domains: clinical, affective, and evaluative.

The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric circles diagram.

The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the perception that a member of a familial caregiving network is under-contributing. The scales include 19 questions about caregiving interactions and behaviors. Participants name each person in their familial caregiving network and indicate which members are engaged in the specified caregiving interactions and behaviors.

The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This scale, the Parental Personal Utility Scale (Parent PrU), was specifically adapted for parents of children who have undergone genomic testing.

The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images. The research tool uses original images from the Chicago Face Database (CFD) and morphs ten models each of CFD Black females, White females, Black males and White males. Also see the How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument in this database.