Genomics | ELSIhub

Goranitis and colleagues developed the genomic utility valuation (GUV) scale to enable a standardized measurement and scoring of genomic utility based on 5 key policy priority indicators: clinical, diagnostic, economic, societal, and family utility.

Ann M Mc Cartney

How to share data - not just equally, but equitably

Editorial: The ethics and challenges of studying the genetics of marginalized populations

Curiosity and uncertainty resolution: Inflating the perceived utility of genetic information

Whose genome? Which genetics?

Getting it right: How public engagement might (and might not) help us determine what is equitable in genomics and precision medicine

Innovating for a just and equitable future in genomic and precision medicine research

Genomics is failing on diversity

Genomics is here: What can we do with it, and what ethical issues has it brought along for the ride?